The National Institute on Aging offers information about these brain disorders that strike middle-aged adults, causing devastating changes in behavior, personality, emotions, language and movement.

Most Americans are familiar with Alzheimer’s disease. But few are aware of the impact of frontotemporal disorders, the cause of up to 10 percent of dementia cases. Unlike Alzheimer’s disease, these devastating disorders usually strike during middle age. Patients and families struggle to cope with changed relationships and the person’s daily needs.

Frontotemporal disorders are caused by changes in the frontal and temporal lobes of the brain.

The frontal lobes control higher-level thinking, such as planning, prioritizing and multitasking. This area of the brain also is involved in language and in motor functions, such as moving the arms, legs and mouth. The frontal lobes help manage emotional responses and enable people to control inappropriate social behaviors.

The temporal lobes play a major role in language and emotions. This area of the brain helps people speak, read, write and connect words with their meanings. It is involved in recognizing recognize objects, including faces, and in relating appropriate emotions to objects and events. When the temporal lobes are dysfunctional, people may have difficulty recognizing emotions and responding appropriately to them.

Depending on which area of the brain is affected, frontotemporal disorders may cause:

  • Physical symptoms—abnormal movement in hands and feet; tremor; loss of coordination.
  • Loss of language—a decline in the ability to speak, understand language, read or write.
  • Emotional changes—apathy; inappropriate emotional responses; lack of social inhibition.
  • Personality changes—problems with thinking; a decline in judgment and insight; embarrassing and uncharacteristic behavior.

The changes may be subtle at first. Families and friends often report that the patient “isn’t acting like himself.” According to the National Institute on Aging, frontotemporal disorders can be hard to diagnose because their symptoms are similar to conditions such as stroke, depression or other types of dementia. But early diagnosis allows patients to get the help they need and plan for treatment and future care. Family caregivers should learn all they can about their loved one’s condition to reduce frustration and cope with the challenges of caring for someone who is gradually losing many of their abilities.

Treatment to control symptoms

At present, there is no cure for frontotemporal disorders. Treatment cannot halt the progression of the disease, but it can help manage symptoms. Several classes of medications are currently used. Physical, occupational and speech-language therapy help patients with movement and speech problems. Physicians, nurses, social workers, and physical, occupational and speech therapists who are familiar with frontotemporal disorders help ensure that patients have the highest possible quality of life and receive appropriate medical treatment.

For More Information

Family caregivers of patients with frontotemporal disorders face a host of challenges, from day-to-day medical care to handling changing relationships. Visit the U.S. National Institute on Aging website to read “Frontotemporal Disorders: Information for Patients, Families and Caregivers” [add link to:  http://www.nia.nih.gov/alzheimers/publication/frontotemporal-disorders] online, or call 1-800-438-4380.

Copyright © AgeWise, 2014

When People With Alzheimer’s Disease Wander

Wandering is one of the greatest challenges faced by family caregivers whose loved one has Alzheimer’s or other memory loss. Over 60 percent of Alzheimer’s patients will become lost at some time. Most are gone only briefly, though long enough to frighten their loved ones.

Others may be lost for an extended period of time, and unfortunately, there are news reports each year of missing Alzheimer’s patients who are never located. It is a sobering fact that if a person with dementia is lost for over 24 hours, he or she is likely to suffer a fall or other serious injury, or even death from injury or exposure. Reports one family caregiver, “The thought that Dad would climb onto a bus at the corner and we would never find him again keeps me awake at night, even on nights when he is getting a good night’s sleep.”

Why do people with dementia wander?

For people with Alzheimer’s or other memory loss, confusion and disorientation make it increasingly difficult to recognize familiar faces and places, even a spouse or child, or a lifetime home. Geriatricians point out that the term “wandering” is something of a misnomer, because many times, in the person’s mind, his or her activity is not purposeless. She may be looking for the bathroom but be unable to find it. He may think it is time to leave for work, even if he retired years before. A great-grandmother might be searching for her children, in the belief that they are still small and in need of her care.

Other factors that contribute to wandering include restlessness, agitation and stress; boredom and lack of a sense of purpose; sleep disorders; physical pain; and the side effects of medications.

Keeping loved ones safe

When a loved one with dementia wanders, family often decide that a nursing home or other residential memory care is the best choice for the person. However, many patients fare much better at home, in familiar surroundings. How can families keep their loved one safe at home, for as long as possible? Here are some strategies recommended by professionals:

Observe your loved one’s patterns. The first step is to understand as best you can the reason for your loved one’s wandering. What are his “triggers”? Where does he usually try to go? During what time of day is he most restless? Does he seem to be looking for something, someone, or someplace?

Adapt the home to keep your loved one safe. Beyond the usual “aging in place” home modifications, you can add special locks to doors, safety gates to prevent exit, and an alarm that will sound if the front door is open. See the resources at the end of this article for information about other home modifications.

Be sure your loved one always carries ID, and a medical alert to tell others he has memory loss. If he doesn’t consistently carry a wallet, try a bracelet, pendant, or clothing labels. Contact your local Alzheimer’s Association office to learn about their Safe Return program. In addition, more and more families are also using a GPS or other tracking device to help locate loved ones quickly.

Notify neighbors and local merchants about your loved one’s condition. Ask them to contact you if they see your loved one alone when he shouldn’t be. Having this conversation with you makes it more likely that others will recognize the problem and feel comfortable getting involved.

Find out if your state has a “Silver Alert” program, similar to the “Amber Alert” for missing children. As law enforcement agencies recognize the needs of growing numbers of adults with dementia, more states are implementing this broadcast notification system.

Try “behavior modification” strategies. If your loved one expresses feelings of being lost or abandoned, reassure him he is safe. Redirect him to safe activities that fill his need for a sense of purpose. If “sundowning” (restlessness at night) is a problem, limit daytime naps. Dementia-care professionals have found that “correcting” a dementia patient frequently can increase agitation. “Don’t correct—redirect” is their guideline.

Have your loved one’s medications reviewed. A person with Alzheimer’s may take medications for the disease itself, for mood or other behavior changes, and for other medical conditions they might have. It is important to take medicines correctly, and it is just as important to be alert for side effects that might increase wandering and other difficult behaviors.

Provide appropriate activities to reduce boredom and isolation. Boredom is stressful for people with dementia, and increases wandering. Art activities, crafts, household tasks, singing, cooking simple foods and socializing all promote well-being and a sense of purpose, which makes it less likely that your loved one will wander.

Take advantage of respite care for family caregivers. Family caregivers need a break to renew their energy and take care of other responsibilities. Locate resources in your community where your loved one can spend time while you are at work, doing other tasks or just taking a break to recharge your emotional batteries. Many families have discovered the advantages of adult day programs specializing in the needs of people with memory loss, which provide condition-appropriate activities, socialization and supervision for people with Alzheimer’s and related conditions. Some of these organizations even offer after-hours care for participants who wander at night.

For More Information

The Alzheimer’s Association [add link to:  http://www.alz.org/care/alzheimers-dementia-wandering.asp] and the National Institute on Aging [add link to: http://www.nia.nih.gov/alzheimers/publication/home-safety-people-alzheimers-disease/home-safety-behavior-behavior] offer information on creative solutions for managing wandering.

Senate Special Committee on Aging Launches Anti-Fraud Hotline

If you or someone you know suspects they have been the victim of a scam or fraud aimed at seniors, the U.S. Senate Special Committee on Aging has set up a toll-free hotline to help.

The hotline was unveiled in late 2013 to make it easier for senior citizens to report suspected fraud and receive assistance. It is staffed by a team of committee investigators weekdays from 9 a.m. to 5 p.m. EST. The investigators, who have experience with investment scams, identity theft, bogus sweepstakes and lottery schemes, Medicare and Social Security fraud, and a variety of other senior exploitation issues, will directly examine complaints and, if appropriate, refer people to the proper authorities.

Anyone with information about suspected fraud can call the toll-free fraud hotline at 1-855-303-9470, or contact the committee through its website, located at www.aging.senate.gov/fraud-hotline.

As chairman and ranking member of the committee, Sens. Bill Nelson (D-FL) and Susan Collins (R-ME) have made consumer protection and fraud prevention a primary focus of the committee’s work. This year the panel has held hearings examining Jamaican lottery scams, tax-related identity theft, Social Security fraud and payday loans impact on seniors.

“If you’re contacted about an offer that sounds too good to be true, then it probably is,” Nelson said. “This new hotline will give seniors a resource to turn to for assistance if they think they’ve been victimized or have questions about fraudulent activities.”

“Ensuring that seniors are as equipped as possible to avoid becoming victims of fraud and other scams is among our committee’s top priorities,” said Collins. “This new hotline offered by the Senate Special Committee on Aging will help to identify and put a stop to the cruel scams that hurt seniors and their families.”

Source: United States Senate Special Committee on Aging (www.aging.senate.gov)